New Perspectives on the End of Life: Essays on Care and the Intimacy of Dying


New Perspectives on the End of Life: Essays on Care and the Intimacy of Dying


Edited by Lloyd Steffen and Nate Hinerman

Year: 2012

Format: Paperback

This inter-disciplinary volume gathers scholars from around the world to explore clinical, cultural and ethical perspectives on end-of-life care, not only for the dying but also for those who attend the dying as caregivers.

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Dying is all about human beings in relationship with themselves and with one another. It identifies a relational process, a coming to terms with limitation; and ‘a good death’ identifies a dying process that has been marked by personal growth, deepening understanding, and the expression of care, not only from care-givers towards the dying, but from the dying toward themselves and in relation to those who care for them.  Death is one thing, dying another. Dying is a process of tremendous variability. Rather than being an abstract universal, dying is profoundly personal and intimate. This book exemplifies the crossing of boundaries, perspective and disciplines to illuminate the intimacy of dying.

Lloyd Steffen and Nate Hinerman

PART 1: Medical and Clinical Perspectives
Code Levels in Cardiology: Who, When and How?
Kathryn Brown and Sarah Weeks

Nursing the Dying in the Emergency Department: The Importance of Therapeutic Intimacy
Cara Bailey

The Final Cut: End-of-Life Empowerment through Autobiographical Video Documentary
Broderick Fox

PART 2: Cultural Perspectives
Palliative Care at the End of Life in Western Europe: The Scandinavian Paradox
James M. Hoefler

Kodokushi (‘Dying Alone’): Japanese Perspectives
Junko Otani

‘Good Death’ in the Americas: Do North and South Americans Die Well Differently?
Emily R. Deibert

Managing Death in Twenty-First Century Scotland
Glenys Caswell

PART 3: Philosophical and Ethical Perspectives
Moral Death
Lloyd Steffen

Accepting One’s Death as a Condition of One’s Happiness?
Dennis R. Cooley

Confronting Mortality: Reflections from Bedsides of the Dying and Workshops with the Living
Fran Moreland Johns and Sue Steele

PART 4: Care-Giving Perspectives
Drawing Lines/Making Connections: The Problem of Distinguishing Disability from Dying in PAD Law
Susan M. Behuniak

Risk of Burnout and Protective Factors in Palliative Care
Sandra Martins Pereira and António M. Fonseca

Making Life rather than Making Sense: Integrating Spirituality into the Daily Practices in a Hospice
Wai Leng Tong

The Institutional Belief in Replaceability: On Systematic Discontinuity in the Treatment of Patients at the End of Life
Ellen Kristvik

Lloyd Steffen, Ph.D., is Professor of Religion Studies, University Chaplain and Director of the Center for Dialogue, Ethics and Spirituality  at Lehigh University in Bethlehem, Pennsylvania.  His books include Life/Choice: The Theory of Just Abortion, Executing Justice: The Moral Meaning of the Death Penalty, and most recently Holy War, Just War:  Exploring the Moral Meaning of Religious Violence.

Nate Hinerman, Ph.D., is a member of the faculty in the School of Nursing and the Department of Theology and Religious Studies at the University of San Francisco. He teaches and writes about death, dying, bereavement, and community-based models of hospice and palliative care.